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Tuesday, December 10, 2013

Life...

Post two for the day... Yup buckle up people I'm on a roll.


I've recently been diagnosed with Crohn's disease. Might I just add that this is a horrible horrible disease. I was first diagnosed with Ulcerative Colitis based on the findings of my colonoscopy. Yes I'm 33 years old and have already had the insanly fun pleasure of having a colonsocopy. But the findings weren't 100% certain it was just Colitis. So then I had to endure an MRE, that was so much fun to. Officially I have been diagnosed with Crohn's disease, stricturing disease in the TI with colitis noted in left, right and transverse colon... So pretty much my intestines suck and don't work.

Initially it just started out small and annoying but as of recently it's gotten worse and has progressed. My doctor told me that I have an aggressive form and it's mostly located in my illeum and so right now food and I are not friends. I have had to change my views on food. Food is not about enjoying a wide variety and more on trying to get nutrition in my body. My body sorta rejects food, it's awesome. I've lost over 40 lbs in the last year. Although I've enjoyed getting my body back to prebaby weight, the whole process of getting there has utterly and truthfully sucked.

I've learned just recently after tending to my flu stricken daughter... That I do not get to be the tendful mother who makes her babies feel better. Why you might ask? Well soon after my daughter got better from the flu I go the flu. When your immune system is already at it's worst and part of your body is attacking itself and then you add the flu bug into the mix it makes for a bad combo. It sent me to the hospital, I litterally lost 10lbs in about a week. I am now on an aggressive steroid to try and get things under control. The risks are HUGE, I had to sign waivers, I have to go in every two weeks for blood work to make sure my kidney's and liver aren't shutting down.

Have I mentioned how much fun this disease is?

So the battle continues, and all through out this I pay a butt load (oh geez) of money for my frequent doctor visits, my prescriptions, my ER visits... It's a battle I'll have all the rest of my life. I have my good days, I have my bad. I really try and stay positive. I have so much appreciated the people who have stood by me through this, especially my amazing husband. He really does try his very best to get me to change my focus on the negative and keep me pointed in the positive. He is my rock and I hope someday I'll be able to repay him for his un faltered love and support.

This is my journey and I'll keep you all updated through out this fun ass disease which usually always has a pun intended joke attached... hahahahahahaaaa!

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